Roughly 70 people around the world are impacted by a GNAO1 disorder. Nearly 20 of these patients have been diagnosed in the past year.  Here are some of their stories.

Emily S.’s Story – This is our Emily

Harlie‘s Story – An Artist and So Much More

Emiliana`s  Story – Learning about Resilience

Mira – It’s All Good

Jacob’s Journey

Rita’s Story – A Hug from Rita

Addy’s Story – The Long Road to a Diagnosis

Emily B.’s Story

Zaak’s Journey – Deep Brain Stimulation Surgery

GNAO1 – A Parent’s Perspective