The Bow Foundation
  • HOME
  • ABOUT
    • About GNA01
    • About the Foundation
  • RESEARCH
    • Grant Opportunities
    • Supported Research
    • GNAO1 International Registry
  • COMMUNITY
    • Our Community
    • Stories
    • In Loving Memory
    • GNAO1 Conference
    • GNAO1 Awareness Day
    • How to Help
    • Contact Us
  • NEWS
  • SHOP
  • DONATE
Select Page

Stories

Behind every GNAO1 patient is a story of strength and perseverance. Those stories and photos are captured below.

To learn more about the lives of a number of GNAO1 kids and adults please check out the film, “Who is GNAO1?” that features families from around the world sharing their stories in their own words.

WATCH THE FILM

Lexi
Lexi

Alexis Lily Kim

Markel

So much fun

Lucas

A Brave Boy

Alina

Alina's brings joy

Madeleine

A gift

Emi
Emi

Always Happy

Calvin
Calvin

Calvin Just Wants to Play!

Anna
Anna

Our Anna

Giammarco
Giammarco

Speaking with His Eyes

Neil
Neil

Neil's Tenacity

Evan
Evan

This is Evan.

Jack
Jack

Jack's Smile

Beau
Beau

Beau's Love for Life

Ben
Ben

Happy & Brave

Annabelle
Annabelle

Annabelle’s Amazing Graces

Emily
Emily

This is our Emily

Harlie
Harlie

An Artist and So Much More

Emiliana
Emiliana

Learning about Resilience

Mira
Mira

It’s All Good

Addie
Addy

The Long Road to a Diagnosis

Rita
Rita

A Hug from Rita

Emily B.
Emily B.

Emily B.’s Story

Zakk

Deep Brain Stimulation Surgery

James
James

GNAO1 – A Parent’s Perspective

Emery
Emery

Photos of Emery

Luis
Luis

Photos of Luis

Ana

Photo of Ana

Elena
Elena

Photo of Elena

Life is a gift that’s better with a bow!

The Bow Foundation is recognized by the IRS as a 501(c)(3) tax-exempt public charity. Our tax identification number is 82-1323389.

Facebook Facebook

© 2023 The Bow Foundation.

  • Facebook
© 2019 The Bow Foundation