News

Charlottesville, VA – The Bow Foundation today announced a total of $300,000 in grants to fund three new projects to advance medical research into GNAO1-related disorders, a rare neurological genetic condition with no common name.  The Bow Foundation grant program is...

We want to send you a special note of thanks for your continued support of the Bow Foundation and our mission to build a better tomorrow for GNAO1 patients and their families. Click here to view our full 2022 year in review - Bow Foundation 2022 Year in Review

We want to send you a special note of thanks for your continued support of the Bow Foundation and our mission to build a better tomorrow for GNAO1 patients and their families. Click here to view our full 2021 year in review - Bow Foundation 2021 Year in Review

Charlottesville, VA - The Bow Foundation today announced a total of nearly $350,000 in grants to fund four projects to advance medical research into GNAO1-related neurodevelopmental disorders, a rare genetic condition with no common name. Collectively, this represents...

Thank you for your past support of the Bow Foundation. The Foundation was established in 2017 to fund GNAO1 medical research, support families, and raise awareness about this rare disease with no common name. Because of your generosity, we are building a better...

Rare disease charity awards UCSF $100,000 for epilepsy zebrafish study January 30, 2020 Charlottesville, VA – The Bow Foundation today announced a grant of $100,000 to the University of California, San Francisco to study GNAO1-related neurodevelopmental disorders, a...

Rare disease charity awards $50,000 post-doctoral fellowship to Scripps Research Institute researcher Thursday, January 30, 2020 Charlottesville, VA – The Bow Foundation today announced a grant of $50,000 to Dr. Brian Muntean, a researcher in the Martemyanov lab at...

Thank you for your past support of the Bow Foundation. The Foundation was established in 2017 to fund GNAO1 medical research, support families, and raise awareness about this rare disease with no common name. Because of your generosity, we are building a better...

Three dozen families came here from Argentina, Italy and all over the U.S. this week to help doctors understand the medical challenges caused by a mutation of the GNAO1 gene.

Since launching in 2017, the Bow Foundation has raised more than $250,000 to fund GNAO1 research, raise awareness, and support families.

Wednesday, June 13, 2018 East Lansing, MI – The Bow Foundation today announced a grant of $48,000 to the Michigan State University Department of Pharmacology & Toxicology. The grant will expand research into a rare genetic disorder with no common name. The research project will be led by Dr. Richard Neubig, Chair of the Department of […]

East Lansing, MI – The Bow Foundation today announced a grant of $48,000 to the Michigan State University Department of Pharmacology & Toxicology. The grant will expand research into a rare genetic disorder with no common name. The research project will be led by...

TOPP Performance Race Parts and TOPP Motorsports today announced a new 2018 partnership with The Bow Foundation.

Washington, D.C. – The Bow Foundation will host a first-of-its-kind medical conference in our nation’s capital on Monday, November 13. Families from around the world will meet with doctors and researchers about GNAO1, a rare genetic disorder with no common name. Roughly 60 children worldwide are impacted by a GNAO1 disorder. Children with the disease […]

James Fox, a GNAO1 patient, drops off the Bow Foundation’s $50,000 check to UVA.  August 9, 2017 Charlottesville, VA – The Bow Foundation today announced a grant of $50,000 to the University of Virginia School of Medicine to fund research into a rare genetic disorder with no common name. The cutting-edge project will be led […]