2018 Year In Review – Since launching in 2017, the Bow Foundation has raised more than $250,000 to fund GNAO1 research, raise awareness, and support families.  This 2018 year in review summarizes how we are investing Foundation resources and highlights upcoming opportunities.  Read More

Bow Foundation 2018 Recap Conference Call – The Bow Foundation today held a conference call recapping the 2018 year and looking ahead at 2019. If you missed the call and are interested in hearing what was discussed, a copy of the recording can be heard here:

Rare disease charity funds $48,000 in CRISPR research at Michigan State University – The Bow Foundation today announced a grant of $48,000 to the Michigan State University Department of Pharmacology & Toxicology. The grant will expand research into a rare genetic disorder with no common name.  The research project will be led by Dr. Richard Neubig. Read More

TOPP Motorsports Partners With Rare Disease Charity for 2018 Season – TOPP Performance Race Parts and TOPP Motorsports today announced a new 2018 partnership with The Bow Foundation. The charity is focused on supporting medical research and increasing awareness for patients with GNAO1, a rare genetic disorder with no common name. Read More

Bow Foundation to Host Inaugural GNAO1 Medical Conference – The Bow Foundation will host a first-of-its-kind medical conference in our nation’s capital on Monday, November 13. Families from around the world will meet with doctors and researchers about GNAO1, a rare genetic disorder with no common name. Read More

Local Charity Funds UVA Rare Disease Research The Bow Foundation today announced a grant of $50,000 to the University of Virginia School of Medicine to fund research into a rare genetic disorder with no common name. Read More