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Latest from the Bow Foundation and GNAO1 News

2019 Year in Review

2019 Year in Review

Thank you for your past support of the Bow Foundation. The Foundation was established in 2017 to fund GNAO1 medical research, support families, and raise awareness about this rare disease with no common name. Because of your generosity, we are building a better...

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Bow Foundation featured on KMOX Radio

Bow Foundation featured on KMOX Radio

Stephen Bell, Bow Foundation co-founder and board member, recently joined KMOX radio to discuss GNAO1, the work being done by the foundation, and recap the GNAO1 medical clinic and conference.

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2018 Year In Review

2018 Year In Review

Since launching in 2017, the Bow Foundation has raised more than $250,000 to fund GNAO1 research, raise awareness, and support families.

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Bow Foundation to host inaugural GNAO1 medical conference

Bow Foundation to host inaugural GNAO1 medical conference

Washington, D.C. – The Bow Foundation will host a first-of-its-kind medical conference in our nation’s capital on Monday, November 13. Families from around the world will meet with doctors and researchers about GNAO1, a rare genetic disorder with no common name. Roughly 60 children worldwide are impacted by a GNAO1 disorder. Children with the disease […]

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Local Charity Funds UVA Rare Disease Research

Local Charity Funds UVA Rare Disease Research

James Fox, a GNAO1 patient, drops off the Bow Foundation’s $50,000 check to UVA.  August 9, 2017 Charlottesville, VA – The Bow Foundation today announced a grant of $50,000 to the University of Virginia School of Medicine to fund research into a rare genetic disorder with no common name. The cutting-edge project will be led […]

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