About the Foundation
The Bow Foundation is dedicated to supporting GNAO1 families, research and awareness.
The Foundation was launched in 2017 by parents of children with GNAO1 disorders. Headquartered in the United States, the Foundation is recognized by the IRS as a nonprofit charitable organization.
Our vision is to build a better tomorrow for GNAO1 patients and their families by fundraising to support medical research that leads to a more informed GNAO1 body of knowledge, better patient treatment options and an eventual cure.
The Bow Foundation has three specific areas of focus:
- Scientific Research
- GNAO1 Family Support
- Awareness and Advocacy
The Bow Foundation is proud to partner with our international partners:
The Bow Foundation is also a proud member of and works with the following organizations:
Global Genes Foundation Alliance
The Epilepsy Society’s Epilepsy Leadership Council
Epilepsy Foundation
Jumpstart Partnership
Child Neurology Foundation
Everylife Foundation
Rare Disease Legislative Advocates
Scientific Advisory Committee
The Bow Foundation’s Scientific Advisory Committee offers guidance on medical research proposals and scientific studies.