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About the Foundation

The Bow Foundation is dedicated to supporting GNAO1 families, research and awareness.

The Foundation was launched in 2017 by parents of children with GNAO1 disorders. Headquartered in the United States, the Foundation is recognized by the IRS as a nonprofit charitable organization.

Our vision is to build a better tomorrow for GNAO1 patients and their families by fundraising to support medical research that leads to a more informed GNAO1 body of knowledge, better patient treatment options and an eventual cure.

The Bow Foundation has three specific areas of focus:

  1. Scientific Research
  2. GNAO1 Family Support
  3. Awareness and Advocacy
Scientific Advisory Committee

The Bow Foundation’s Scientific Advisory Committee offers guidance on medical research proposals and scientific studies.

Erika Axeen, MD
Howard Goodkin, MD, PhD
Michael McConnell, PhD
Richard Neubig, MD, PhD
John Schreiber, MD
Amy Viehoever, MD, PhD