Washington, D.C. – The Bow Foundation will host a first-of-its-kind medical conference in our nation’s capital on Monday, November 13. Families from around the world will meet with doctors and researchers about GNAO1, a rare genetic disorder with no common name.
Roughly 60 children worldwide are impacted by a GNAO1 disorder. Children with the disease suffer from severe developmental delays, seizures, and movement disorders.
“This conference gives us a great opportunity to foster new relationships, discuss shared experiences, and engage the medical community in a conversation about treatment and research opportunities,” Bow Foundation Co-Chairs Emily Bell and Alice Fox said in a statement. “We appreciate the continued support of our many donors as we work to increase GNAO1 awareness and change lives.”
Conference participants from across North and South America will build relationships while reviewing existing GNAO1 medical papers and discussing ongoing research. The conference will be streamed live on Facebook starting at 10:30 a.m. Click here to tune in.
The Bow Foundation is dedicated to supporting GNAO1 families through enhanced research and increased awareness. The foundation was launched in April of 2017 by two families who have children with a GNAO1 disorder. Visit www.BowFoundation.org to learn more or donate.