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Roughly 300 people are known to be impacted by a GNAO1 related neurodevelopmental disorder.

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Roughly 300 people are known to be impacted by a GNAO1 related neurodevelopmental disorder.

Most patients have been diagnosed in the past year or two.

Who is GNAO1?

To learn more about the lives of a number of GNAO1 kids and adults please check out the film, “Who is GNAO1?” that features families from around the world sharing their stories in their own words.

What We Do

The Bow Foundation supports GNAO1 families by raising awareness, enhancing research, and fostering community.

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ABOUT GNAO1

To date about 300 people worldwide have been identified as having a mutation on the GNAO1 gene.

RESEARCH

We fund cutting edge research into GNAO1–related neurodevelopmental disorders and similar rare diseases.

COMMUNITY

We facilitate opportunities for families affected by GNAO1 to connect and share their stories.

STORIES

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Read stories from some of the roughly 200 people impacted by a GNAO1 disorder.

News

Latest from the Bow Foundation and GNAO1 News

2020 Year in Review

2020 Year in Review

Thank you for your past support of the Bow Foundation. The Foundation was established in 2017 to fund GNAO1 medical research, support families, and raise awareness about this rare disease with no common name. Because of your generosity, we are building a better...

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DONATE

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Your donation will help fund GNAO1 medical research and change lives. No amount is too small.